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Blog Index
 Channi... |
ky |
mcsixofus |
 lssrez |
rdhdgurl |
fortun... |
 danies... |
Dragon... Twitch - Life with an epileptic husband
I live with a 30 year old epileptic, have no insurance, and often wonder if he (and myself, for that matter) is completely mad, delusional, or worse. then a seizure happens, and all that washes away as I rub his back and wait for him to wake up.
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kaypinky |
 slammi... |
strang... |
estifa... |
fiesta Fiesta's Blog
I have several parts to my blogs. My epilepsy life has had landmarks in my life. I have had epilepsy for 59 years. My landmarks are child, teenager, hereditary, 1st STATUS EPILEPSY and 2nd STATUS EPILEPSY and how I am now.
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roslyn... |
 becca9... |
cocola |
nitabe... |
tina girl Tina Topamax
My name is Tina and I've been dealing with seizures since I've been 13, I'm now 33. My doctor finally put me on Topamax a year ago and I'm very happy to say that I've been seizure free since then although I've struggled with the side effects of this drug...
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FreeEp... |
 Dtiller |
 shelia... |
 kbell19 |
 POH |
 bookwo... |
 ali oli |
Blog Activity
 kroiz New - For a special friend
Happy Birthday to you, Happy Birthday to you, Happy Birthday to Manoj, Happy Birthday to you
I cant sing it to you so typing will have to do. I hope you know what the Happy Birthday song is over there? Anyways, I hope you had a fabulous birthday ...
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 phunn New - Travolta Family
Travolta Family.... I am so sorry to hear of your loss. My heart and thoughts are with you.
~ CJ ~
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Channi... New - Ever Stop Randomly for a Second but You're Still Awake
Every now and then I randomly "freeze". It's kind of like a day dream but it's only for a few seconds and I know I'm doing it. Afterwards I'm exhausted. It happens throughout the day. Does anyone else have this?
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ky New - were not crazy
Been in Cal for 3 years now. Hawaii the last 16 years. ug. Two kids - son - daughter. Son has problems. 3 1/2 cats. 1 dog - rat- mouse- two love birds. looking for help for son. Has not been dxs yet
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mcsixofus New - John Travolta not an advocate?
I was just wandering why someone with as much money and fame would not be an advocate for his sons condition.
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 epi_help New - Condolences to the Travolta family and so many others
I haven't written in a while on my blog but have talked to so many of you in chat and the forums. However, as I watch the news this week, I am saddened to hear of the death of John Travolta's son from a seizure. Usually people don't think about seizures...
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bookwo... New - Pictures of Puppy
Here are a couple pictures of the new puppy. She is a border collie/labrador mix that loves sports,cuddling and wants to play with the cat. After a couple days of being shy and trying to hide,she was named Heidi. She fits in well with the family and also wants...
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 crashl... New - To John Travolta
My sympathies to John Travolta and his family. My heart goes out to you and your family.
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kroiz |
 whofan New - Life lately...
i havent been on in a while, a lot has been happening....i dont know...sometimes i feel like i am going insane..i really do. Sometimes i wish the world would just stop and i would stop breathing, and i could be in peace...but i know i cant do that..there...
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 Lauren... New - ohh bother
today is a sad day, because I had to drop my classes for this semester, this will be the 3rd semester in a row...I guess im still sort of in denial...i thought i'd be able to drive and i'd be feeling better by now...and as it is i will be in the hospital in...
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 mindyk |
 wookie |
crashl... New - Sigh.. And I'm The Bad Guy..
No, I haven't written in a while, but because my family doesn't read this I'm going to be obnoxious and really vent.
My younger sister went through terrible divorce that I feel really bad for...but my sympathy ends there. She bawled her head off that she...
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lssrez New - HELP
ok i was dianosed with epilepsy my sophmore year. And now i had my first seizure was on may 14, 2007 with my ex boyfriend. and now i have had three surgeries since then. i have also been so stressed out with school, cause i dont know if i will graduate with...
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kroiz |
mindyk New - Pissed off big time!
I just found out more details about my family in law spying on me and I am extremely upset right now. I have this blog to share emotions and seek and give support. But it seems my words are being used against me, though I have nothing to be ashamed of. So...
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mindyk |
phunn |
phunn |
phunn New - Let them go.... time for me...
I want to write a blog. And I like to compose and be clever, this is going to be a jumble. Kinda the way I feel, which is I don't. Know how I feel that is.
So what's up...? Niece is getting married. Nephew is going away to Job Corp. Brother...
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 Colina New - Welcome to 2009
Well I finaly feel like writing again after many months of just reading. Also I am very tired and this is a good way to keep my butt parked for awhile lol.
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rdhdgurl |
mindyk |
kroiz New - HAPPY NEW YEAR
What a year for our family. You can click on the link (1st one) to see Jessicas year in pictures video. I hope it works because Im not very good at this stuff. It's a great video and song
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 Tarby New - Eye twitches....
I was curious if anyone else (with JME or not) has ever had eye twitches. What is it like for you? For me, it is worse in the morning, but happens any time when I feel really tired and randomly too.
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 beachc... New - happy new year
ok so i havent written a blog in a long time now, but i still think of you all please dont think i dont. il never forget all the support you all have given me thro the hard years,
i hope that next year is as good to all of you as this year has been...
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fortun... New - Here to Help others
A little about me I am a person living with epilepsy for
about 14 years, my life is quite normal, I think I could have handled
the seizures for years. So I am here to share my history and to help
others with my experience. My last seizure was in 2004...
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 Crystal11 |
 hayley G New - i dont understand!
as i am writing this now i don't feel like i am here yet again and i really don't get it at all! people have said there auras as i really don't feel like im here, im so scared i honestly feel like i am not in touch with anyone and this is one big dream. but...
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danies... New - Epilepsy
I was dignosed with epilepsy at the age of seven years old. The Cause they pointed out was mingitus of the softspot of my brain at 6mnths old which left scar tissue on my brain later to learn it spread through the yrs. As Well as they think...
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 caboose New - Stand by your man
O.k., so most people with epilepsy would rather not be on medication and a lot of them come off without telling their doctors. Husbands are another thing entirely.
Fine.
My meds came in the mail and we're headed for our vacation tomorrow. He...
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mindyk New - got the biopsy results back
We got the results back from the biopsy, and they where inconclusive. They found abnormal cells but they don't lead to any answers. So the plan is before the week is over they will start him on IV Prednisone, after that they will put him on the pill form....
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 aydens... |
Dragon... New - Christmas was interesting
Christmas was interesting, this weekend. We went to my inlaws, a nearly three hour drive. My husband was worried, because he had decided it was time to tell his family; he hasn't told them for all these years, in spite of the fact the seizures have kept...
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caboose New - Guess I'm decreasing my meds
So, I call the Canadian pharmacy and ask for a refill - no refills left - call the doc who says he won't write a script until I see him for a $300 check up, call doc #2 who couldn't give a rats arss about seeing me & writes me the prescription.
Keep...
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kaypinky |
slammi... New - VNS QUESTIONS
I have had the vns implant for the last 4 or five years it seems to control seizures ok but recently my implant has gone dead and my seizure activity has increased alot also I am getting red marks where the implant sits and where the wires sit i am getting...
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strang... New - males with epilepsy
I WOULD REALLY LIKE TO KNOW WHY THEY HAVE NOTHING ON MALES WITH EPILEPSY other than that i am new to this
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estifa... New - Seize The World
Please visit www.seizetheworld.com for more-regular updates to this blog, to be sure that all links work properly, and to be sure that you receive that you receive the full experience. Thanks!
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 confuzzed New - Post-holiday exhale
Well, I survived the holidays, including my family's annual material goods exchange and life-critique fest. Wasn't too bad, really. There was more stress involved in the anticipation of the whole thing rather than the various activities themselves.
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kroiz |
mindyk |
 MichaelK New - Having a brief seizure is sometimes like being thrown in a country with a new language
How much is enough? I had another seizure today while taking my neices back from a friends house. My sister, their mother, was also there and so she saw me fall as I had a brief seizure. Fortunately, everyone was very caring of me, especially my neices.
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 fishy New - What just happened to me?
Happy Holidays! So, my Christmas Eve started out so strange! While I was walking through my house, I started thrashing around...I really felt like I couldn't get control. I was like a ping pong ball, bumping into things and staggering. It lasted maybe 1...
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phunn New - Saint Nick and the Space Nicks
http://www.youtube.com/watch?v=WfjPnN0Sb3Q
Merry Christmas.... ~ CJ ~
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fiesta New - child
I was diagnosed with Epilepsy when I was 6 years old. That was 59 years ago. I am now 65. I was put on Dilantin. The I was allergic to Dilantin. The way I found out was that the chicken pox was going around.]
I lived in the country. We had a country...
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 Adz New - PRAISE GOD, AND WELL DONE YOU!
OK, LISTEN UP GUYS. SOME OF YOU WILL REMEMBER THAT A FEW MONTHS AGO I ASKED YOU TO PRAY FOR A YOUNG GIRL WHO HAD FALLEN AND BUMPED HER HEAD, AND WAS NOW HAVING SZ.
NEWS IN LAST NIGHT WAS THAT CHILD NEUROLOGIST SAYS IT LOOKS LIKE SHE IS GOING TO...
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kroiz |
caboose New - He nearly got me as a result of my noncompliance and uterus - why?
That was a bad one.
That was a weird one.
It's 5am and I jus woke up with such terror, such absolute horror and helplessness. I almost had one.
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